#Deep Brain Stimulation
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weird-brain-weird-life · 2 months ago
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My Journey with Rare Diseases: A Story of Resilience and Hope
It’s been a LONG time coming, but I’m finally ready to share my story. Living with two rare diseases has shaped my life in ways I never could have imagined. This is a glimpse into my journey.
The Early Years: Discovering Morquio Syndrome Type B:
I was born with two very rare diseases, starting with Morquio Syndrome type B, a condition I was diagnosed with at age 10. It all began with a routine scoliosis test performed by my school nurse. I’m not sure if they still conduct those tests, but for me, it was the beginning of understanding my health challenges.
Leading up to my diagnosis, I had several symptoms that raised concerns. I was below average height for my age group, my growth had started to slow down, and I experienced extreme pain in my hips and knees, which made my gait awkward. This was just the beginning.
At age 11, I underwent a hip operation that ultimately failed, resulting in excruciating pain and the loss of my ability to walk independently. This was one of the hardest moments of my childhood, as I grappled with the implications of my condition.
The Second Diagnosis: GM1 Gangliosidosis
By the age of 13, I received a second diagnosis: GM1 Gangliosidosis. The symptoms leading to this diagnosis didn’t align with those of Morquio Syndrome type B. I began experiencing hypertonic muscles, tremors, and dystonia, which complicated my health journey further.
Turning Points: Hip Replacements and Independence
Fast forward to my teenage years, at ages 15 and 16, I underwent hip replacement surgeries. Miraculously, after these procedures, my spasms and pain disappeared. For the first time, I felt a sense of relief and regained my independence. By 17, I was off to college, navigating campus life with newfound mobility and excitement.
Challenges Ahead: The Impact of Medication
However, my journey took another unexpected turn when I was 19. I was prescribed a mood stabilizer that I believe has significantly impacted my life. As a dopamine blocker, it exacerbated my neurological symptoms related to GM1. I experienced slowed movements and speech, became a high choking risk due to slowed chewing, and found my voice quiet and delayed.
Although I discontinued that medication in 2020, I have never fully recovered from its effects. My battle with GM1 Gangliosidosis has continued to decline, and I’ve had to adapt to new challenges.
A Story of Resilience
My journey with these rare diseases has been fraught with challenges, but it has also been a testament to resilience and hope. I share my story not just to highlight the struggles, but to emphasize the importance of understanding and supporting those with rare conditions. Each day is a new opportunity to advocate for myself and others facing similar battles.
Thank you for taking the time to read my story. I hope it resonates with you and inspires others to share their own journeys.
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justdrowning · 4 months ago
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they were testing my dbs device yesterday and i was like yeah im not sure how well its working, then they turned it off (without telling me) and immediately i was in a dystonic posture hitting my head on the wall. And then they were like okay so we just turned it off for a second. I would say it’s working.
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unwelcome-ozian · 9 months ago
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Studies have found that because of DBS’s sudden onset of stimulation, many patients feel that its effects are overly mechanical and can even feel disruptive to a person’s sense of cognitive authenticity (de Haan et al., 2017; Mathews, 2011). Another study found that DBS stimulation decreased patient’s levels of self-reflection and motivation (Pham et al., 2015).
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hashmatrajput · 1 month ago
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drmanishbaldia · 2 months ago
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Dr. Manish Baldia – Deep Brain Stimulation Surgery in Mumbai
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Dr. Manish Baldia is a distinguished neurosurgeon based in Mumbai, renowned for his expertise in Deep Brain Stimulation Surgery in Mumbai, advanced spine surgeries, and stereotactic procedures. With a profound commitment to patient care and a track record of successful outcomes, he offers hope and improved quality of life to individuals battling complex neurological disorders.​
Deep Brain Stimulation (DBS) Surgery – Transforming Lives
Deep Brain Stimulation (DBS) is an innovative surgical treatment designed to alleviate symptoms of neurological disorders such as Parkinson’s disease, essential tremors, and dystonia. The procedure involves implanting electrodes into specific areas of the brain to regulate abnormal neural activity, thereby reducing symptoms like tremors, rigidity, and involuntary movements.​
Why Opt for DBS Surgery?
Improved Quality of Life: DBS can significantly enhance daily functioning, enabling patients to regain independence and participate more fully in daily activities.​
Medication Reduction: Many patients experience a substantial decrease in medication requirements post-DBS, minimizing drug-related side effects.​
Long-Term Benefits: DBS offers sustained symptom relief, with many patients enjoying improved motor functions for years following the procedure.​
Ideal Candidates for DBS Surgery
Medication-Resistant Symptoms: Individuals whose symptoms are no longer adequately managed by medications.​
Significant Impact on Daily Life: Those whose quality of life is severely affected by neurological symptoms.​
Overall Health: Candidates should be in good general health without severe comorbidities that could complicate surgery or recovery.​
A comprehensive evaluation by Dr. Baldia and his multidisciplinary team determines each patient's suitability for DBS surgery.​
Advanced Spine Surgery – Restoring Mobility and Comfort
Dr. Baldia specializes in a range of spine surgeries aimed at treating conditions such as:​
Herniated Discs: Addressing displaced disc material causing nerve compression and pain.​
Spinal Stenosis: Relieving narrowing of the spinal canal that leads to nerve pressure.​
Degenerative Spine Conditions: Managing age-related changes affecting spine structure and function.​
Utilizing minimally invasive techniques, Dr. Baldia focuses on reducing recovery times, minimizing postoperative discomfort, and achieving optimal surgical outcomes.​
Stereotactic and Functional Neurosurgery – Precision in Treatment
Dr. Baldia's expertise extends to stereotactic and functional neurosurgery, offering minimally invasive solutions for various neurological disorders. These procedures involve precise targeting of specific brain areas to treat conditions such as:​
Movement Disorders: Including Parkinson’s disease and dystonia.​
Chronic Pain Syndromes: Providing relief from intractable pain conditions.​
Epilepsy: Offering surgical options for seizure control.​
By leveraging advanced imaging and surgical technologies, Dr. Baldia ensures high precision in these interventions, leading to improved patient outcomes.​
Patient-Centric Approach – Compassionate Care
Dr. Baldia believes in a holistic approach to patient care, emphasizing:​
Individualized Treatment Plans: Tailoring interventions to each patient's unique medical history and condition.​
Comprehensive Preoperative Counseling: Ensuring patients and their families are well-informed and prepared for surgery.​
Robust Postoperative Support: Providing continuous care and rehabilitation to facilitate recovery and maximize the benefits of surgery.​
Visit Dr. Manish Baldia’s Clinic in Mumbai
If you are looking for the best neurosurgeon in Mumbai for DBS surgery, spine surgery, or stereotactic procedures, consult Dr. Manish Baldia today.
📍 Clinic Address:Address: Lalbaug Diagnostic Centre, Dr. Babasaheb Ambedkar Marg, near ladu Samrat Vada Pav, l, Opposite Avighna IX, Lal Baug, Parel, Mumbai – 400012
Phone: 096767 67507
Time: 9:00 am–9:00 pm
Connect on Social Media
Stay updated with the latest advancements in Deep Brain Stimulation and neurological treatments by following Dr. Manish Baldia on various platforms:
Facebook | Instagram | Twitter | LinkedIn | Medium | Tumblr | YouTube | GitHub | Quora | Reddit | Pinterest
For more information, visit our website or contact us today!
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healthclinics · 6 months ago
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SCC
Specialty Care Clinics offers advanced deep brain stimulation (DBS) therapy to manage movement disorders like Parkinson's disease, essential tremor, and dystonia. Our experienced neurosurgeons implant neurostimulators to regulate brain activity and improve quality of life.
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swampflix · 9 months ago
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Podcast #220: A Hole in the Head (1998) & Hunting for Hedonia (2019)
Welcome to Episode #220 of The Swampflix Podcast. For this episode, Brandon is joined by Nail Club‘s Sara Nicole Storm to discuss the 1998 self-trepanation documentary A Hole in the Head and the 2019 deep brain stimulation documentary Hunting for Hedonia. 00:00 Nail Club08:18 A Hole in the Head (1998)32:47 Hunting for Hedonia (2019) You can stay up to date with our podcast…
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bestneurologistinmumbai · 1 year ago
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                                      Who is a good candidate for Deep Brain Stimulation (DBS)
Allow me to give you the Patient Criteria for a good DBS candidate upfront. You are the ideal DBS candidate if you fulfil all the following:
Go Ahead with DBS
1. Your life is significantly hampered, despite taking proper medications
2. If the diagnosis of Parkinson’s disease is sure, and there are no “red flags.”
3. You improve markedly with the “Levodopa Challenge test”.
4. You clearly understand the risks & success rates, and have realistic expectations
Stop & re-consider
1. If you have other serious medical problems which would make surgery risky.
2. If you are uncontrollably depressed.
3. If you have severe thinking & memory problems.
READ MORE...Best Neurologist In Mumbai, Thane- Dr Kharkar, NeuroPlus Epilepsy & Parkinson's Clinic
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andthe-damned · 1 year ago
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8 incisions from two surgeries in 2 months. i didn’t even realize the second surgery was SIX incisions until i was already in the hospital bed. and they are like several inches, i have staples stitches and surgical glue right now. all three. I have six healing incisions on my scalp now. i’m so tired. i want a haircut but i can’t for 6 weeks. that’s like june 4th. i’m thankful for having the opportunity to get this surgery and being accepted into the study but wow i’m uncomfortable
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drmanishbaldia · 3 months ago
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Who is the Best Deep Brain Stimulation Surgeon in Mumbai?
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Deep Brain Stimulation Surgery in Mumbai has emerged as a groundbreaking neurosurgical procedure that offers relief to patients suffering from movement disorders such as Parkinson’s disease, dystonia, and essential tremors. Dr. Manish Baldia, an esteemed neurosurgeon in Mumbai, specializes in Deep Brain Stimulation (DBS), helping patients regain control over their motor functions and enhance their quality of life. With state-of-the-art medical advancements, this procedure has proven to be a life-changing treatment for individuals facing severe neurological impairments.
Understanding Deep Brain Stimulation Surgery
Deep Brain Stimulation (DBS) is a highly sophisticated neurosurgical procedure that involves implanting electrodes into specific areas of the brain. These electrodes are connected to a neurostimulator (pacemaker-like device) placed under the skin near the collarbone. The device sends electrical impulses to targeted brain regions, modulating abnormal neural activity responsible for movement disorders.
This procedure is primarily used for patients with:
Parkinson’s Disease: DBS helps manage symptoms such as tremors, rigidity, and bradykinesia (slowness of movement).
Dystonia: Patients experiencing involuntary muscle contractions can benefit significantly from this treatment.
Essential Tremor: A condition causing uncontrollable shaking, particularly in the hands, which can interfere with daily activities.
Obsessive-Compulsive Disorder (OCD): In select cases, DBS has been found beneficial in treating severe, drug-resistant OCD.
Why Choose Deep Brain Stimulation Surgery in Mumbai?
Mumbai has emerged as a leading center for neurological treatments, with world-class medical facilities and experienced neurosurgeons. Dr. Manish Baldia is at the forefront of this field, bringing extensive expertise in performing DBS surgeries with precision and care. Several factors make Mumbai an ideal destination for this advanced procedure:
Expertise of Dr. Manish Baldia
Dr. Manish Baldia is a renowned neurosurgeon with vast experience in performing Deep Brain Stimulation surgeries. His expertise, combined with state-of-the-art technology, ensures high success rates and improved patient outcomes.
Advanced Medical Infrastructure
Hospitals in Mumbai are equipped with cutting-edge neuro-navigation systems, intraoperative imaging, and stereotactic surgical techniques, which enhance the accuracy and safety of DBS procedures.
Comprehensive Preoperative and Postoperative Care
Patients undergoing DBS surgery receive thorough preoperative assessments, including brain imaging and neurological evaluations, to determine their eligibility. Postoperative care includes device programming, physiotherapy, and regular follow-ups to ensure optimal results.
Affordability and Accessibility
Compared to Western countries, DBS surgery in Mumbai is more cost-effective while maintaining world-class standards. The city is also well-connected, making it accessible to both domestic and international patients seeking high-quality neurological care.
Location Details for Consultation
For those considering Deep Brain Stimulation Surgery in Mumbai, consultations with Dr. Manish Baldia are available at:
Dr. Manish Baldia - Functional Neurosurgeon, Mumbai Lalbaug Diagnostic CentreDr. Babasaheb Ambedkar Marg, near Ladu Samrat Vada Pav, opposite Avighna IX, Lal Baug, Parel, Mumbai - 400012
Phone: 096767 67507Time: 9:00 am – 9:00 pm
Practicing Locations:
Wockhardt Hospital
Lalbaug Diagnostics
Ruby Hall Hospital
Connect on Social Media
Stay updated with the latest advancements in Deep Brain Stimulation and neurological treatments by following Dr. Manish Baldia on various platforms:
Facebook
Instagram
Twitter
LinkedIn
Medium
Tumblr
YouTube
GitHub
Quora
Reddit
Pinterest
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 Deep brain stimulation neurosurgeon Jaslok Hospital is credited with the largest number of stereotactic procedures performed by a single individual in the country, boasting a success rate exceeding 95%. Dr. Paresh Doshi is also distinguished for operating on the world's oldest patient (82 years old) with Parkinson’s disease.
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praveshkumarmedical · 2 years ago
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All you need to know about Deep Brain Stimulation
Deep Brain Stimulation does not cure the disease completely but it helps to reduce the symptoms and improves the quality of life significantly. After the surgery, the pulse generator implanted in the chest is activated by the doctor which can control the special remote. You can also turn your stimulation on and off based on the recommendation of the doctor.
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hydraulicfluidinmyteapot · 6 months ago
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no one should ever worry about their house fic being out of character when the season four finale exists btw
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toxooz · 1 year ago
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Hi! I was curious how old is everyone especially ponti!
~ cause im in love with him~
What who said that 👀
But speaking of ! What's his favorite pick up line hehe
OK SO
Ponti: 22
Ollie:25
Abio: 21
Oscar: 19
Remy: 20
Kari: 21
Vinny: 10
i think thats FINALLY the ages theyre locked into at least for the official series bc as i age they kinda age with me in a way??? which is cool but also can be confusing AHA like i feel like when im 30 or something im gunna draw Ollie as if he were 30 idk thats just how its gunna progress or i'll just make new older OCs i rlly dont know 🤔 only time will tell!
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drpriya · 1 year ago
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Speech therapy can be highly beneficial for individuals with Parkinson's Disease (PD) who experience speech and communication difficulties. Parkinson's Disease can affect the muscles involved in speech production, resulting in symptoms like soft or monotone voice, slurred speech, and difficulty articulating words.
Speech therapy for Parkinson's Disease typically focuses on improving:
Voice projection and loudness: Exercises to increase vocal volume and strengthen vocal muscles.
Articulation: Techniques to improve clarity and precision of speech sounds.
Rate of speech: Strategies to address rapid or slow speech.
Intonation and pitch variation: Training to enhance expressiveness and reduce monotone speech.
Breath support: Exercises to improve breath control for sustained speech.
Speech therapists may also incorporate strategies to enhance communication effectiveness in everyday situations, such as using visual cues, practicing conversational turn-taking, and adapting communication techniques for specific environments.
Individuals with Parkinson's Disease must work with a speech therapist who has experience and training in treating communication disorders associated with neurological conditions like PD.
The therapist can tailor the treatment plan to address the individual's specific needs and goals, helping them maintain or improve their ability to communicate effectively despite the challenges of Parkinson's Disease.
In addition to speech therapy, there are several other treatments and interventions available for Parkinson's Disease (PD), aimed at managing symptoms, slowing disease progression, and improving quality of life.
Some of these treatments include:
Medications: There are various medications used to manage the motor symptoms of Parkinson's Disease, such as tremors, rigidity, and bradykinesia (slowed movement). These medications include levodopa/carbidopa, dopamine agonists, MAO-B inhibitors, and COMT inhibitors. These drugs help increase dopamine levels in the brain or mimic the effects of dopamine.
Deep Brain Stimulation (DBS): Deep brain stimulation is a surgical procedure that involves implanting electrodes in specific areas of the brain, such as the subthalamic nucleus or globus pallidus. These electrodes deliver electrical impulses to modulate abnormal brain activity associated with Parkinson's symptoms. DBS can help alleviate motor symptoms, such as tremors, rigidity, and dyskinesias, and may reduce the need for medication. Get DBS done at the best hospitals in Mumbai like Jaslok Hospital Mumbai. Also know the cost of Deep Brain Stimulation Therapy in Mumbai.
Physical Therapy: Physical therapy focuses on improving mobility, balance, flexibility, and strength through exercises, stretching, and gait training. Physical therapists can also teach strategies to manage freezing of gait and improve posture to reduce the risk of falls.
Occupational Therapy: Occupational therapy helps individuals with Parkinson's Disease maintain independence and perform activities of daily living more easily. Occupational therapists may provide assistance with tasks such as dressing, eating, writing, and using adaptive equipment to compensate for fine motor difficulties.
Speech Therapy: As mentioned earlier, speech therapy can help individuals with Parkinson's Disease overcome speech and communication difficulties, including voice changes, slurred speech, and swallowing problems.
Exercise Programs: Regular exercise, such as aerobic exercise, strength training, balance exercises, and stretching, can help improve motor function, mobility, and overall physical fitness in individuals with Parkinson's Disease. Exercise has also been shown to have neuroprotective effects and may slow disease progression.
Nutrition and Diet: A balanced diet rich in fruits, vegetables, whole grains, and lean proteins can support overall health and well-being in individuals with Parkinson's Disease. Some studies suggest that certain dietary patterns, such as the Mediterranean diet or the MIND diet, may have neuroprotective effects and help reduce the risk of cognitive decline.
Supportive Therapies: Additional supportive therapies, such as cognitive-behavioral therapy, counseling, and support groups, can help individuals and their caregivers cope with the emotional and psychological challenges associated with Parkinson's Disease.
Treatment may need to be adjusted over time as symptoms change and the disease progresses.
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